I ran across this note on a FASD e-newsletter. I thought it did a good job of explaining something I’ve never been able to put into words.
I have come to believe that the real difficulty for me as a parent of children with FASD is found in exactly that, the ambiguity.
Pauline Boss, PhD is a therapist who is known for her work in the area of “ambiguous loss”. When loss comes in the form of death the loss is definite and clear and there are rituals and compassion for the grieving. Ambiguous loss is less clear and may be more difficult on some levels to live with. Boss explains, “With ambiguous loss, there is no closure; the challenge is to learn to live with the ambiguity.”
When I was a little girl playing with dolls I imagined that I would be a loving and competent mother someday to my children. I never imagined that I would question my decisions or my ability to care for them or keep them safe from harm. I never imagined that other people might question my abilities or blame me for the way my children behaved. I never imagined that there would be days when I would feel helpless and overwhelmed and afraid. And I never thought I’d mourn a little on each birthday as I watched them blow out their candles, knowing that the magic age of adulthood would come much too quickly for my children.
But I’m learning to live with the ambiguity. Connecting with other parents of children with FASD helped tremendously as it was through those connections that I learned that the feelings I had on those difficult days were normal and those concerns I had about my ability to care for my children or keep them safe did not make me a bad mom, they caused me to develop the skills to be the kind of advocate my kids need. I replied to the mom who had emailed me intending to tell her exactly that, but I wrote only two words. I understand.
~Kari Fletcher, MOFAS 2009

The moment this child realizes their physical dominance, the end has come in the parent’s ability to control this child’s behavior. There is no pliable heart that can be won. These are the kids who may eventually be labeled “sociopath” and will probably end up in jail. The Bible calls these children, “scorners.” In their mind,they are the center of the universe and everyone ought to serve them. All of their bad behavior is written off as justified because they believe they have been unfairly treated. They only remember the discipline, not their behavior that warranted the discipline. Not only will they tell others they were abused when they were not, but they will gloat to others that they “got Mom and Dad in trouble.” These children are very good at twisting the truth and telling it in a believable manner. They are very confused and deluded individuals who can be a danger to anyone that gets in their way.
When you sign on the dotted line for the adoption, you are told that there are post adoption services available in case you run into difficulties. Through circumstances beyond our control, we were thrust into the state system, asking for help with one of our difficult children. Being people of faith, we’ve had no desire to access them in the past because we strongly avoid running to the world for help. Granted, there are really good programs out there that appear to be well suited for special needs kids, but the fact that they are not based on the Bible is the main reason we are very hesitant to use them. Yet, we’ve found that in the Christian realm, those who are experienced or educated in FAS issues are far and few between. Few pastors have training in dealing with FASD issues and many don’t believe it even exists. It is a real physical malady that is permanent – actual brain damage that affects things like reasoning and memory. Spiritual growth hinges on the ability to reason and remember the truths that are discovered. But I do believe that spiritual regeneration along with personal sanctification is the first step that will lead to the Holy Spirit’s ability to control and guide – even those who have learning and retention difficulties. Though FAS is forever, the Holy Spirit can guide toward managing the deficits in a supernatural way – but the child must be willing and able to accept direction.
Have you ever been on a path that in your estimation was so difficult that you felt you were stumbling every step of the way leaving you exhausted and bleeding all the while wondering why God is allowing it? We’ve been on this particular path for four months. Because of the many special needs kids we’d adopted, this was a familiar road and a perfect example of the old adage, “familiarity breeds contempt.” Although God has been with us every step of the way, don’t think for a moment I haven’t begged God to end it and put us on a different path! I realize God has seen fit to take us the hard way in order to strengthen us and equip us for the next journey but each journey has become longer and more difficult. It did get a bit tiring!
There is a camp called 